Good grief with everything that has been going on here would you believe something happened two weeks ago which was significant and I completely forgot to tell you all. Something I promised to share with you – cos you asked . .so just remember you asked . . .ok . . .sigh . . .
Remember my horrible mouth biopsy . . .well I went to see the oral Consultant and got the results . . .I DON'T have Sjögrens . . . that is the good news. The not so good news is that I still have no idea what is causing all the aching throughout my joints, plus my dry eyes and dry nose. The former I have had since the late 70's, the latter I am not sure how long I have had it - kind of crept up on me. Everything did appear to get better recently when I upped my Thyroxine (I have the Autoimmune Hashimoto's disease.) But in the last few days the aching is back again. So I have upped my thyroxine again - don't worry I know when I am taking too much. My Doctor trusts me to play around with my dosage - which I was told back in 1994 would need to be increased over the years as my thyroid died.
Would you believe I don't have an appointment yet to go back and see the Rheumatologist (spelling) and now I am still no further forward than I was last November . . .I think perhaps the next stage is to go and see an oncologist - see if the problem is linked to my Thyroid . . . not very hopeful though.
The aching can be very debilitating, but I do find it helps if I make myself go out for a brisk hours walk every morning after I have taken my Thyroxine (luckily my dogs encourage this - the walking that is - they aren't interested in the pills). I know when the aching is going to flare up because I start to feel tearful. My dry eyes disease also flares up and so do my stomach problems ie ulcer symptoms and irritable bowel symptoms.
Gawd I sound such a wreck . . .at least I don't get the migraines anymore and that is a HUGE relief.
I have so many symptoms that all seem to come together personally I would have thought that the Consultant's would have had some clue by now. Then again I think everything I have is similar to Sjogrens's and Hep C - neither of which I have, but which have been a red herring for the last year.
Going to have an Endoscopy on the 4th December to see what is going on in my stomach. Was dreading it - but the pain has been getting so bad now that would you believe I am looking forward to my endoscopy - note to self . . .get a life . . . I also have a breath test on the 19th November for the Helicobacter pylori bacteria - which means I can't take any of the acid reducing pills etc for a month.
Now apart from that I am feeling great . . . no not being flip - once I get myself moving in the morning and get my attitude adjusted each day I do feel ok . . . so onwards and upwards to ever better things.
